Skip over navigation PatientsLikeMe ® PreferencesFAQCrisisLog out HOME MY HEALTH PATIENTS (YOU ARE HERE)FORUMS CONDITIONS TREATMENTS SYMPTOMS RESEARCH Go to: Neurological and Brain forum Manage my forums, topics, and tags Code of conduct Search all forums trigeminal neuralgia Search Advanced search 1,311 results in all forums Show results from the Neurological and Brain forum (68 topics) Show results from my forums (141 topics) Sort by: Previous page 1 2 3 … 44 Next page Ear Conditions in the PatientsLikeMe forum Tags: ear ache Number of helpful marks: 0 Last updated Sep 14, 2017 Deactivated McWmn on Sep 14, 2017 Perforated eardrum Arthritis affecting the jaw Infected tooth Impacted tooth Braces on teeth Eczema in the ear canal Trigeminal neuralgia, or chronic facial nerve pain Symptoms of Ear PainSymptoms associated with ear pain depend on the underlying cause. Symptoms… Go to post Uncomfortable Sensations in Face Making me Crazy! in the Neurological and Brain forum Tags: A typical facial pain TMJ trigeminal nerve Teeth Grinding Number of helpful marks: 4 Last updated Sep 13, 2017 Portrait default thumb SjSailboat on Sep 10, 2017 I feel like it IS nerve related because these throbbings just pop up all over my face where the trigeminal nerve is located. They ruled out trigeminal neuralgia because I wasn't having the "lightning shock" pain, but this is enough to drive me over the edge… Go to post Hello! Say "Hi" here! The "Introduce Yourself" thread in the Muscles, Bones and Joints forum Tags: living with asthma lumbar spine degeneration of cervical intervertebral disc joint pain Degenerative Disc Disease Fibromyalgia Chronic fatigue syndrome (CFS) Disability Insurance antiphospholipid antibody syndrome Lupus CRPS Russell Silver Syndrome Life with RA welcome Surgery RA (Rheumatoid Arthritis) New Member Bone Spurs Introduction Osteoarthritis Bipolar Peripheral neuropathy pseudo gout PTSD Number of helpful marks: 157 Last updated Nov 12, 2017 44847 thumb mojo4221 on Apr 25, 2012 years before this. I am a patient as well as a RN. I also "put up" w/ chronic depression, chronic lower back pain, MVP,and Trigeminal Neuralgia. I'm 48 yrs young, have a great 9 year old son and a wonderful fiance. My fiance may also have FM after suffering a knee… Go to post I'm.miserable in the Neurological and Brain forum Number of helpful marks: 0 Last updated Aug 31, 2017 99769 thumb SarahLembke on Aug 31, 2017 they see your post and respond with their support. You might also be interested in reviewing the condition report for chronic neuralgia, which you can find here. It has more information about the community here at PatientsLikeMe, and includes things like treatments… Go to post Dealing with back pain for 7 months, MRI shows unobstructing disc bulge between L4 and L5. My foot is getting very weak and it's scaring me. in the Muscles, Bones and Joints forum Tags: Depression lumbar pain Sciatica pain Neuralgia Spinal Epidural Injection Anxiety Knee pain Back pain muscle weakness Number of helpful marks: 12 Last updated Aug 26, 2017 Portrait default thumb Campbell64 on Jul 11, 2017 especially after standing in one position for a long period of time and the my primary care Dr has diagnosed me with sciatica neuralgia now for going on six years I have had many days at or and have had so many injections I feel like a human pin cushion and now… Go to post PD, Sleep Attacks & RBD in the Parkinson's Disease forum Tags: narcolepsy sleep problems Number of helpful marks: 26 Last updated Sep 23, 2017 89048 thumb prudentepa on Aug 22, 2017 disease - than the classic movement issues. I have heart disease as well and have been plagued with PVC's - frequently in trigeminy - which may be a form of dysautonomia and part of PD. So complicated.l Thanks again!… Go to post Migraine Surgery; has anyone had it? in the Neurological and Brain forum Tags: Botox migraine occipital neuralgia Surgery Feedback needed Number of helpful marks: 2 Last updated Aug 28, 2017 88141 thumb firefly84 on Aug 21, 2017 plastic surgeon who has expertise in surgery for migraines. I went to see if he had any ideas for dealing with my occipital neuralgia. He did his exam and said that I'm a very good candidate for surgery since I respond well to Botox and occipital blocks. He… Go to post Stem cell paste injection for nerve pain, joints, & lumbar discs in the PatientsLikeMe forum Tags: Back pain chronic pain Stem cell treatment Number of helpful marks: 3 Last updated Aug 08, 2017 Portrait default thumb KaseyKat on Jul 27, 2017 grow new cartilage for a joint. It can even heal ruptured disc. Dr. Malan is the first physician worldwide to treat pudendal neuralgia with stem cell paste injection. This is truly God's Medicine. Take care....Peggy Rogers… Go to post I'm 14 and have occipital neuralgia in the Neurological and Brain forum Tags: Depression occipital neuralgia Feedback needed Number of helpful marks: 8 Last updated Aug 07, 2017 Portrait default thumb nasimahmed on Jul 31, 2017 I'm a 14 year old boy I have had occipital neuralgia which is a sharp/electrical pain on the right back side of my head for 3 years and I have come to my breaking point. I desperately want it to go. It is so hard to concentrate on school work and I've been… Go to post Had surgery for Geniculate Neuralgia in the Neurological and Brain forum Tags: Member update Brain Surgery geniculate neuralgia Number of helpful marks: 3 Last updated Aug 04, 2017 Portrait default thumb CCanRun on Jun 20, 2016 as an option... I had brain surgery to just about a month ago to help relieve the pain from geniculate neuralgia (or nervous intermedius neuralgia). The surgery was Nerve Sectioning (cutting nerve) of the nervous intermedius nerve. The surgery appears to… Go to post Pain Management with anesthesiologist in the Neurological and Brain forum Tags: Pain management Trigeminal Neuralgia Number of helpful marks: 2 Last updated Aug 27, 2017 43070 thumb sunshine6249 on Jul 29, 2017 I have discovered that my pain management specialist is the best way I can get pain relief for trigeminal neuralgia when all the meds were making life unbearable. I could not function with the meds and they were not successful in eliminating the pain. I couldn't… Go to post This is how folks with MS feel - very interesting and so true ! in the Multiple Sclerosis forum Tags: physical symptoms multiple sclerosis personal experiences/stories awareness raising activities Life with MS Symptoms Bloody fantastic!!! Number of helpful marks: 564 Last updated Sep 22, 2017 Portrait default thumb Tinkerbelle on Feb 27, 2009 your legs and then try and stand up and walk without looking like the town drunk. Hopefully you won't fall down. TN (Trigeminal Neuralgia): Take an ice pick and jam it into your ear or cheek whenever the wind blows on it, or a stray hair touches it. If you… Go to post lower back pain in the Muscles, Bones and Joints forum Tags: Back pain Number of helpful marks: 13 Last updated Aug 17, 2017 Portrait default thumb Campbell64 on Jul 11, 2017 with pain from my buttocks down the back of legs the drs have tried those injections on me also but diagnoses now is sciatica neuralgia and the pain is so bad it sometimes goes into my feet I have been on Loritab it got to where it didn't help so now they have… Go to post "The Introduce Yourself" post in the Epilepsy forum Tags: Work / jobs Temporal Lobe Epilepsy (TLE) breakthrough seizures adapting Carbamazepine Zonegran Valproate Keppra Finding the right provider (doctor/therapist) Depression, Epilepsy, Driving grand mal seizures phenobarbital Vimpat New Member Getting diagnosed Introduction Tegretol Dreaming (sleepwalking) Marijuana Dilantin Clonazepam Lyrica Lorazepam Types of Epilepsy Neurontin Epilepsy Ambulatory EEG Keppra-rage manic depression Lamictal tongue biting Number of helpful marks: 466 Last updated Nov 24, 2017 36009 thumb campbellephant on Jul 09, 2011 the ER, had MRI and CT; all clear, and sent home with instructions to follow up with my primary. He told me it sounded like trigeminal neuropathy and referred me to neurologist. She monitored me for a year, and I had no other symptoms except the daily tingling… Go to post A Letter to help others understand you and Fibromyalgia. in the Fibromyalgia and ME/CFS forum Tags: Letter to Normals Helping others understand Friendship Fibromyalgia Fibromyalgia & Fatigue Centers (FFC) main symptoms fibro response Number of helpful marks: 589 Last updated Nov 29, 2017 Portrait default thumb christmaskat on Jun 06, 2014 Hi, It's not Trigeminal Neuralgia. I had a few Brain scans. I only asked because a girl I worked with has Fibro and her Reumatologist said that my face pain could be part of Fibro. And yes I am on medication. I take Neurontin, tramadol, and percocet. I… Go to post Portrait default thumb heartcoremom on Jun 05, 2014 symptoms that are part of the diagnosis of fibro. And it's hard to tell if your facial pain is fibro or something else....like trigeminal nerve pain. A lot of us are on some sort of pain medication. Has your doc tried giving you anything? Pain med, Neurotin,… Go to post just diagnosed with microscopic colitis in the Digestive and Intestinal forum Tags: microscopic colitis Life with IBD Number of helpful marks: 24 Last updated Jul 05, 2017 Portrait default thumb bobthebuilder54 on Nov 14, 2011 their neurology dept, or rhuemy dept? That is where I have been going. The scleroderma clinic there and to a Dr. Allan in the neurolgy dept. But really wish I would have gone to rush. My son could have gotten me in right away with the doctors there, instead of… Go to post FM/a blood test in the Fibromyalgia and ME/CFS forum Tags: FM/a Diagnosis Feedback needed Number of helpful marks: 4 Last updated Jun 26, 2017 105937 thumb Gigglez on Jun 25, 2017 Wk program where they get you off all pharmaceuticals as well. I didn't do that. $$$ Plus, that doesn't rid of the Trigeminal Neuralgia, nor Chronic Migraines. I've done everything but Botox & a piercing for those. @LivingwRAAF I completely understand… Go to post Returning back here in the Immune, Inflammatory and Infections forum Tags: scared Depression Dry eyes Red Hopeless Number of helpful marks: 22 Last updated Aug 07, 2017 82499 thumb EpicJinx on Jun 05, 2017 if people could sign the petition https://www.change.org/p/urgent-research-funding-needed-for-severe-dry-eye-disease-corneal-neuralgia... if possible to help speed up dry eye research as it is needed!!! We can't wait years (I certainly can't!!) Sorry having a… Go to post I HAVE RELIEF FROM TMJ in the Neurological and Brain forum Tags: Member update TMJ Number of helpful marks: 8 Last updated Jul 01, 2017 105937 thumb Gigglez on Jun 20, 2017 Mouth guard at the dentist. I have an Osteopath that I see every 3-4 weeks, plus a Chiropractor. They "reset" me. I have Trigeminal Neuralgia (awful, now constant, pain) with it & Chronic Migraines now, so I utilize Diazepam, Fentanyl Patches & Baclofen… Go to post Are there members with GOOD stories re Lyrica? in the Neurological and Brain forum Tags: MS and Pain Tricyclic Imipramine Lyrica Nortriptyline Central Sensitisation Central Pain Syndrome member needs ideas Burning Feedback needed Gabapentin Antidepressant Number of helpful marks: 45 Last updated Jun 15, 2017 61357 thumb funktafied on May 28, 2015 didn't really work. When I first started on it in 2013 after being diagnosed with Chronic paroxysmal hemicrania a form of Trigeminal Neuralgia and with Sunct syndrome. It was $239/mo so due to that I went on Gabapentin. I was bedridden and after 6 months I qualified… Go to post 71419 thumb AnaCat on Jun 04, 2015 4week flare up & its still really bad on 1000mg of Epilum & 75 Lyrica!!!! plus the pain meds. id don't know what trigeminal Neuralgia is but sounds painful.i will look it up i think it the nerve in your face..not sure..gamma rays or surgery both sound… Go to post 61357 thumb funktafied on Jun 03, 2015 take epitol (carbamazepine) 300 mg/day and divalproex (depakote) 2000 mg/day I used to take gabapentin but as my Trigeminal Neuralgia and Sunct syndrome increased in pain it quit working. It took my neurologist time to get the amounts i take and the meds… Go to post Help, I am new and trying to learn about something I never heard of in the Neurological and Brain forum Tags: Central Pain Syndrome Member needs support Pain management Central Sensitivity Syndrome Number of helpful marks: 31 Last updated Jun 25, 2017 Deactivated chickennugget on Jun 10, 2017 important and I know what foods to eat and not to eat for my bladder and inflammation .like Nightshades for instance.. I know Trigeminal neuralgia responds better to medications and surgeries such as the gamma knife or the balloon surgery to stop the pressure on the… Go to post Deliverance Kit with OM13 Formula for Trigeminal Neuralgia in the Neurological and Brain forum Tags: possible trigeminal neuralgia Trigeminal Neuralgia Number of helpful marks: 0 Last updated May 25, 2017 Portrait default thumb rita0212 on May 25, 2017 pains and have been treated with natural medicines. The bliss they feel and live in after recovering from ailments such as Trigeminal Neuralgia, Tinnitus etc. is unprecedented. I'm one of them and I trust them to its core. I trust them because of their years of… Go to post MS cured in the Multiple Sclerosis forum Tags: Accelerated Cure Research Number of helpful marks: 137 Last updated May 20, 2017 Portrait default thumb MS cured on May 16, 2017 the spasticity even worse Tingling and numbness (paresthesia) of the hands and feet later extending up my legs Trigeminal neuralgia I realize the MS establishment questions the possibility of these “remarkable recoveries”… Go to post Trigeminal Neuralgia - Glycerol Injection Rhizotomy in the Neurological and Brain forum Tags: Trigeminal Neuralgia Number of helpful marks: 5 Last updated May 14, 2017 100459 thumb wescat on May 04, 2017 to TCE, mainly subclinical, is revealed by electrodiagnostic techniques. Pain or numbness in the distribution of the trigeminal nerve suggests a disorder of that nerve.… Go to post Face pain in the Multiple Sclerosis forum Number of helpful marks: 2 Last updated May 03, 2017 11478 thumb Kardan on May 03, 2017 A friend of mine has trigeminal neuralgia and when that flares up it is very painful for him. I'm sorry that you're having that to deal with that.Karen… Go to post Triggers becoming more easily tripped in the Epilepsy forum Tags: TRIGGERS! Number of helpful marks: 7 Last updated May 16, 2017 28313 thumb Neissy on Apr 20, 2017 off n on and thank God the tv was on (and a channel w no info-mercials!) Looking forward to this visit w my neuro. The trigeminal neuralgia is also acting up. So I better go get ready! Wish me luck!… Go to post help with occipital neuralgia diagnosis in the Neurological and Brain forum Tags: Tinnitus Ringing in the ears... head pressure occipital neuralgia Number of helpful marks: 7 Last updated Aug 28, 2017 74287 thumb Emma on Jan 20, 2017 if you have seen the condition report for occipital neuralgia? The condition reports are a great way of making contact with fellow patients: https://www.patientslikeme.com/conditions/768-occipital-neuralgia/overviewI'm sure you will find fellow members supportive… Go to post 88141 thumb firefly84 on Feb 06, 2017 @Vita99, I have occipital neuralgia as one of my many conditions. I don't have the hissing in the ears or clogged ears at all, but the pain at the base of the skull is unbelievable. When it flares, I literally cannot even let my head touch a pillow. Combing… Go to post Gilenya Journal in the Multiple Sclerosis forum Tags: vertigo and nystagmus Back pain Journal Total Body weakness eye pain Nausea new treatment Dr. Prefers Gilenya Insomnia Neck pain Number of helpful marks: 791 Last updated Jul 28, 2017 Portrait default thumb jeanjean on Jul 11, 2011 Pain that drives you insane! Sure sounds like trigeminal neuralgia to me. Read up on it Jean… Go to post Portrait default thumb jeanjean on Jul 11, 2011 The tooth ache might be Trgeminal Neuralgia... Check that out bfore you have any major dental work done.… Go to post Portrait default thumb jeanjean on Jul 11, 2011 That tooth ache might be Trgeminal Neuralgia... Goes along with MS for many Check that out before you have any major dental work done.… Go to post DARA's Thoughts --Life changes in the Mental Health and Behavior forum Tags: Depression Luvox Journal Fear chronic pain Gabapentin Coping aging parents Self-Medication Alzheimer's self-doubt Grief Prozac Tardive Dyskinesia phobias Topamax Number of helpful marks: 4,860 Last updated Apr 18, 2017 20130 thumb DARA25 on Mar 22, 2009 have a strange headache. Top of my head, right eye, and down the right side of my spine. I have had these before, it is trigeminal neuralgia. I don't know what set it off.… Go to post 20130 thumb DARA25 on Mar 24, 2009 my mother today I researched some meds I might bring up with my pdoc tomorrow:Topamax: Can help with weight loss, and trigeminal neuralgia (which I have a mild case of)Pristiq, wellbutrin, and adderall. … Go to post 20130 thumb DARA25 on Mar 25, 2009 she has more patients using it with good results. I stuck to my guns. I don't want to gain any more weight and I have trigeminal neuralgia. I am also very sensitive to drugs like RKaren is, and I told her about how I didn't want the possible side effects of… Go to post My update in the Epilepsy forum Tags: Member update personal experiences/stories Number of helpful marks: 1 Last updated Apr 12, 2017 28313 thumb Neissy on Apr 09, 2017 them btw because my doses are so often not a set option here.) My conditions: TLE, postictal and migraine headaches, trigeminal neuralgia, progressing balance problems, progressing memory loss. With the meds I have for my ep now (Lamictal, Trileptal , and… Go to post Previous page 1 2 3 … 44 Next page ? Back to top PatientsLikeMe ® Company About us Blog Careers FAQs Funding News Philosophy Data for good Openness Privacy User agreement Contact Contact us Crisis resources https://www.facebook.com/PatientsLikeMe/https://twitter.com/patientslikemehttps://www.linkedin.com/company/patientslikemehttps://www.youtube.com/PatientsLikeMehttps://www.instagram.com/patientslikemeinc/ (c) 2005-2017 PatientsLikeMe. All Rights Reserved. Information on PatientsLikeMe.com is reported by our members and is not medical advice. left side of face: recurring tingling & numbing sensation in the Neurological and Brain forum Tags: Bell's Palsy left side face Tingling Number of helpful marks: 8 Last updated Dec 15, 2017 Portrait default thumb Jenn332 on Dec 14, 2017 From what you described, it sounds like trigeminal neuralgia. I have had it for 5 years now and it still bothers me when my face goes numb and tingles. Hope you find answers in your tests. … Go to post A Thread To Celebrate US!! in the Multiple Sclerosis forum Tags: Fatigue MS celebrations Humor PLM forum RIBALD Agent Orange Inspiration Difficulty finding work member support hot pain Empowerment MRI results Pain What is typical MS? Be Yourself Again ?? Member update Smile Adult Viewing Only Number of helpful marks: 102,799 Last updated Dec 15, 2017 27152 thumb bjshockley on Jan 18, 2012 on Fri for that. So far, it's not helping. they are sending me to another pain doctor to get a nerve block shot for my trigeminal neuralgia. If that doesn't work, then they use a laser to kill off the nerve. Hope my face doesn't fall off. LOL But, the pain… Go to post 27152 thumb bjshockley on Dec 30, 2011 Jan, I have had the same problem. Teeth were fine. One time it was internal shingles. This time it is my trigeminal neuralgia. Hope you get relief soon. Luv ya, Bon… Go to post 27152 thumb bjshockley on Jan 09, 2012 the headache today? I feel for you. I had migraines for 18 years. Then they just went away in 2001. Then in 2005, the trigeminal neuralgia started. LOL For 4 wonderful years I had no headaches. It was great. I pray for both of you, that yours will go away… Go to post The night-owl thread in the Mental Health and Behavior forum Tags: lack of energy bedtime Fear of darkness Post here daily Friends chronic pain Timezones Dreams Night terrors No Energy Mirtazapine sleep cycles rough night Gastroparesis sleepless and cure Venting hypnagogic hallucinations Adderall ADD/ADHD Night Sweats sleeping problem Hyperthyroidism Sleep medication Fear of sleeping migraine sleep problems wide awake Books early waking insomnia time of day Dysthymia Trazodone Herbal treatments Nightmares Vivid dreams mental health Chatting Memory Loss Restless Leg Syndrome (RLS) Insomnia smoking cessation Sleep Arthritis make me feel better? Support Number of helpful marks: 5,421 Last updated Dec 15, 2017 Deactivated Kitten24 on Oct 11, 2014 have continuous debilitating pain in my mainly lower left jaw and teeth, seen lots of dentists, think it's nerve pain, trigeminal neuralgia, waited 8.30am - 7pm by a fixed phone for doctor to call, then he wouldn't give me any nerve pain blockers until he sees… Go to post Deactivated Kitten24 on Jan 11, 2015 my meds as they are. But I see my neurologist on 21st and he might make some changes. Suffering badly from epilepsy and trigeminal neuralgia. My priest blames all my aberrant behaviour on all the meds I have to take, which are psychoactive and highly sedating… Go to post Deactivated Kitten24 on Oct 14, 2014 email: Very good outcome: the doctor IS referring me to my neurologist, whom I am due to see soon, about my probable trigeminal neuralgia, rather than an oral surgeon; he has given me a weeks worth of the amitriptyline I wanted, which has given me such a… Go to post JUST SAYING....................... in the Multiple Sclerosis forum Tags: MS plmFamily Life with MS Support Social life Just sayin Number of helpful marks: 64,722 Last updated Dec 15, 2017 55354 thumb Faraday on Oct 15, 2013 hi purple I have been researching this lately as my GP is leaning towards me having trigeminal neuralgia. Most people think trigeminal neuralgia is sharp, shooting pains in the face, predominantly one side. A lot of people relate it to electric shock like… Go to post 20746 thumb doughntpanic on Mar 01, 2014 you have easily managed your whole life-yeah, I'm really tired today too. *You had trigeminal neuralgia? Haha, who told you that? Only old ladies get trigeminal neuralgia! I kid you not, folks, I've heard each one of these things from a couple of doctors… Go to post 35119 thumb mollie on May 04, 2013 troubles so i'm done whining. Nancy if anyone as the right to whine it is you!!! it scares me to even think about the word trigeminal neuralgia. my biggest fear is it coming back. my old neuro that dx me years and years before my ms dx said i would always have… Go to post Diagnosis Mystery, desperate, strength in the Neurological and Brain forum Tags: Ataxia Lyme disease Baclofen Treatments Misdiagnosis Member needs support Referral to MS Clinic autoimmune disease and neuropathy Deep brain stimulation (DBS) community support narcolepsy Glaucoma DX, Confused Frustration Atopic dermatitis Dystonia Depression Psoriatic Arthritis Restless Legs Functional Neurological Disorder Optic neuritis sarcoidosis Restless Leg Syndrome (RLS) LimboLand parkinsonism degenerative cerebellar disease Spasms Member update possible MS undiagnosed Falls Caregivers Support RLS Shoulder pain member needs ideas Neurologist Number of helpful marks: 1,158 Last updated Dec 14, 2017 57498 thumb BeingIs on Jul 21, 2013 Basilar Migraine. After some work-ups and medication changes it was changed to Cervogenic. That area below the skull is where the Trigeminal Ganglia are located which cause the Migraine. After me Cervival Epidural, I have not had a full blown one. I am still having… Go to post 56280 thumb Gussie28 on Oct 07, 2013 fact I can hear it now as I write this. Tends to be worse on days when the cervical nerves play havoc with my balance (the trigeminal nerve gets affected - producing issues with balance and the ear, sometimes the jaw.}Is the pump in place and if so, how long… Go to post 57498 thumb BeingIs on Jul 21, 2013 stabbing that seems to be inside my ears at times but I do not recall it being at the same time as tinnitis.I think it is the Trigeminal Ganglia. When I researched how Cervicogenic headaches can cause headaches like Migraines, I discovered that there as a Ganglia… Go to post Multiple Myeloma Patient Thread in the Cancer forum Tags: Autologous stem cell CT scan Effects of Chemo Therapy Chemotherapy Velcade itchy hands Stem cell transplantation lymph nodes Multiple Myeloma measles Caregivers Family PET SCAN Number of helpful marks: 12,935 Last updated Dec 14, 2017 62432 thumb margeal09 on Oct 17, 2014 Just got a FB short message from Betty. Due to neuralgia, she can't wear her glasses and can't see to type us.… Go to post Relapse (?) and steroids in the Multiple Sclerosis forum Number of helpful marks: 0 Last updated Dec 13, 2017 49450 thumb tallyflute on Dec 12, 2017 neurologist's office and request infusion of Solu-Medrol . I have usually taken a 500 mg dose IV except when I had a bout of trigeminal neuralgia during which I took a 1000 mg dose. This time, however, rather than setting up an infusion for me, my doctor's office… Go to post The Introduce yourself thread in the Mental Health and Behavior forum Tags: Transgender single mom social anxiety male depression Bipolar 1 disorfder Dysthymia adult child of bpd mother empty nest Dissociative Identity Disorder bipolar and depression single living Introduction midlife LGBTQ Newcomers bipolar II intro Schizoaffective Disorder PTSD Education ADD/ADHD Disability Insurance Abuse Schizophrenia Loneliness Depression Autism New Member Paranoia Autism Spectrum Disorder mental health PLM What Depression feels like Anxiety introspection Number of helpful marks: 1,047 Last updated Dec 13, 2017 7269 thumb peacelover on Nov 29, 2008 granddaughter, a partner, and a kitty. I also live with somthing called Trigeminal neuralgia (TN) or tic doloureux (also known as prosopalgia) is a neuropathic disorder of the trigeminal nerve that causes episodes of intense pain in the eyes, lips, nose, scalp… Go to post Welcome! Introduce yourself here! in the PatientsLikeMe forum Tags: chronic illnesses lesions Psoriatic Arthritis Cymbalta cerebral palsy celiac disease commonalities Parkinson's disease panic disorder spleen cyst my intro Bipolar I Arthritis RA (Rheumatoid Arthritis) Asperger's LDN (Low Dose Naltrexone) Tourettes multiple sclerosis Psoriasis Introduction finger pain spastic paraparesis Seasonal Affective Disorder (SAD) Spinocerebellar ataxia Personality High blood pressure Colitis Bladder problems bipolar II Epilepsy Holidays PTSD revlimid Humor Abilify ADD/ADHD Degenerative Disc Disease Fibromyalgia Diabetes Polyarthralgia Polymyalgia rheumatica (PMR) Schizophrenia Depression Autism avascular necrosis Surgery Hypothyroidism New Member Myasthenia Gravis obesity eating Prostate cancer Autism Spectrum Disorder Raynaud's Phenomenon Anxiety bipolar mixed Life with Psoriasis Number of helpful marks: 747 Last updated Dec 13, 2017 15568 thumb Legsdiamond on Mar 13, 2012 hole. Marriage followed the house and the job went kaput couldn't save it. Started to get sick with things like tri geminnal neuralgia in my face 5 oprations later still had the pain they found an anti siezure medication to block the pain no more morphine. pain… Go to post Friends, now and in the future... in the Fibromyalgia and ME/CFS forum Tags: chronic pain Weather Lyme disease member support Fibromyalgia, Migraines, joint pain Fibromyalgia/depression Number of helpful marks: 3,356 Last updated Dec 14, 2017 105937 thumb Gigglez on Apr 15, 2017 Well, after a long month and a half in this Stitch of a Flare, my Trigeminal Neuralgia is becoming relentless. The young, sweet looking gal at the pharmacy thought it was swell to give me a 5 minute runaround over my pain patches yesterday's eve enticing my… Go to post What are you thinking right now? in the Mental Health and Behavior forum Tags: Fear Pristiq Anhedonia Positive thinking / hope / optimism bulimia agitated Chronic fatigue syndrome (CFS) bone cancer Medication Changes Pets Munchausen Syndrome Neurologist sleep problems Accomplishments Treatments schizoid personality disorder Off Topic TRIGGERS! Exhaustion self harm idealation Flashbacks want to disappear Self-Injury Bipolar I Tired Cancer Religion Boredom inpatient hospitalization Member needs support Major Depressive Disorder Not Thinking ranting nature Love Therapy despair sick heat wave Early Mortality want to be left alone incest Bipolar medical crippled bipolar II Stopping treatment Elves Epilepsy Nightmares health concerns Hopeless Insomnia PTSD Sadness Work / jobs chronic pain self-care Itching DogsLikeMe Psychosis Moods Venting Fluoxetine ADD/ADHD chronic pain syndrome nauseous Wilson unmotivated Fibromyalgia disappointment misery suicidal Asthma Anger cranky Exhausted Loneliness trying to suppress irritability Expressing emotional health thinking out loud Pain depression, bipolar worried Helpless Depression Chatting Vyvanse TBI impulsive Confused Crying Geodon Amputation phenobarbital gadgets rapid cycling restricting Fatigue Pissed off Post here daily random Disclosure eating happiness bipolar management over tired wound healing natural healing friend near death Breathing Problems Thoughts Ritalin Walking Panic Self Harm Side Effects Music paranoid personality disorder Anxiety lack of social support Isolation help and support Number of helpful marks: 7,956 Last updated Dec 12, 2017 30843 thumb bpcat2010 on Sep 22, 2013 things that "could be worse" to help me when I'm feeling like a bomb is going off in my head (literally) because of the trigeminal neuralgia. My list is short. You have to look up the disease to be able to help me understand what feels worse but here are some… Go to post Come say "Hi!" here! The "Introduce Yourself" thread in the Neurological and Brain forum Tags: Idiopathic Intracranial Hypertension Las Vegas chronic illnesses Dysarthria Henderson, NV gluten Caregivers cerebral palsy Poetry Treatments speech and language problems Restless Leg Syndrome (RLS) TBI concussion undiagnosed New Member Fatigue multiple sclerosis Support Groups Major Depressive Disorder Introduction Migraines chronic daily headache needing HELP Back pain Lyme disease Peripheral neuropathy Dystonia post concussive syndrome Transverse Myelitis Insomnia Sciatica pain Stroke Huntington's Disease MSA Number of helpful marks: 495 Last updated Dec 13, 2017 57242 thumb AnniesDizzy on Jul 13, 2012 Hi! My name is Annie. I have Chiari Malformation, epilepsy, trigeminal neuralgia, occipital neuralgia and migraines. I have had brain surgery to decompress my brain from the Chiari Malformation. So I am an official "zipperhead" . I am trying to get disability… Go to post 30843 thumb bpcat2010 on Oct 27, 2013 I'm Pamela and I have trigeminal neuralgia. Currently, my medication is working VERY well. I don't feel very much pain lately and I'm very lucky. Not so lucky in other areas- my neuro thinks I'm having "mini strokes". I don't understand truly how to determine… Go to post Portrait default thumb kellyrachelle on Mar 28, 2015 Chiari malformation and ease some of your pain/other symptoms? I ask because my mom had the same thing done for CM and Trigeminal Neuralgia.… Go to post Alleana's Journey in the Mental Health and Behavior forum Tags: Self Discovery soul work fighting the system to function dreaming Poetry humor as therapy Journal spirit fighting for life chronic pain Number of helpful marks: 3,776 Last updated Dec 13, 2017 88897 thumb Alleana on Feb 08, 2017 exponentially. Having a hard time trying to think through the brain fog from the pain which has triggered what would seem to be trigeminal neuralgia on both sides of face as well as migraine and sinus inflammation. My chronic pain is so bad I am shaking from it. I would… Go to post 81771 thumb allisonkai on Feb 08, 2017 might help...a trip to the ER perhaps...I know you are not up to driving..but a friend , perhaps to get you there????hate the trigeminal pain, bigtime...I cut lidoderm patches and put the strips on my face for it when it's really bad, helps sinuses as well..or… Go to post A PatientsLikeMe researcher’s take on the opioid crisis and new prescribing regulations in the PatientsLikeMe forum Tags: Research opioids member insights drug free Lupus PatientsLikeMe Pain management request for help with CHAMPVA Chronic Back Pain with MS chronic pain member support Number of helpful marks: 1,422 Last updated Dec 15, 2017 31163 thumb Gemster on Jul 12, 2017 vet and shared that I'd had a 30 year history of seizures, been on almost every AED ever produced, and except for some trigeminal neuralgia that occurred after my brain surgery, no AED every stopped or helped with my post ictal (after seizure) headaches, endometriosis… Go to post 31163 thumb Gemster on Sep 29, 2017 and disabling side effects of any medication I've ever taken, and are not pain relievers. The only exception is with trigeminal neuralgia for which several of the AED's are a god send. These have no place in cancer pain, yet I'm seeing even veterinarians… Go to post 111169 thumb Snakelover on Aug 07, 2017 chronic migraines, degenerative disc disease, sciatica and a bunch of neuro issues. I was diagnosed last week with occipital neuralgia as well. In 49, feel 80 and I just want some quality of life. I remember a few years ago what living was like and it's gone… Go to post Life-changing second opinion stories: "I decided to get a second and third opinion..." in the PatientsLikeMe forum Tags: primary fibromyalgia Second Opinion Diarrhea personal experiences/stories allergies and fibro Irritable Bowel Syndrome (IBS) Number of helpful marks: 51 Last updated Dec 10, 2017 Portrait default thumb sigmashine2000 on Nov 25, 2017 catheterization. I had that test which was normal. I noticed on my telemetry that when I had chest pain I was having bigeminy and trigeminy PVC’s. I tried to tell the doctor, an electrophysiologist, that this was the caused. He blew me off and sent me home. I had… Go to post nerve damage in my feet in the PatientsLikeMe forum Tags: Peripheral neuropathy Number of helpful marks: 20 Last updated Dec 09, 2017 31163 thumb Gemster on Dec 03, 2017 neuropathy has become an orphan disease. The ONLY drugs that can help are the seizure drugs; dilantin helped me with trigeminal neuralgia and although it's not on the usual list, you might ask your docs to try it if the neurontin doesn't work. The only known… Go to post here to ask and give information in the Multiple Sclerosis forum Number of helpful marks: 28 Last updated Dec 04, 2017 62556 thumb JanG1360 on Nov 23, 2017 Home » Conditions & Treatments » Trigeminal Neuralgia Trigeminal Neuralgia Share Email Print Trigeminal neuralgia (tic douloureux) is a disorder of a nerve at the side of the head, called the trigeminal nerve. This condition causes intense, stabbing… Go to post Portrait default thumb lady_express_44 on Nov 23, 2017 relationship between Transverse Myelitis and Multiple Sclerosis. Your posting and article is about Transverse Myelitis, not Trigeminal Neuralgia, Janice. Welcome to the forum, Jan. I get TN (have also had TM) in various places in my face. I have surprisingly found… Go to post 119632 thumb soulation on Nov 23, 2017 Hey Jan Trigeminal Neuralgia I have experienced this once sort of like a baseball bat across the face? this was just once though, and years ago I didn't know what it was and had no Health Team near me at the time I do have a friend who suffers with this she… Go to post Teeth chatter in the Parkinson's Disease forum Tags: jaw tremor teeth chattering Number of helpful marks: 10 Last updated Nov 29, 2017 Portrait default thumb kmflynn on Nov 29, 2017 between my teeth helps, (as long as you remember not to bite down). Gum causes a problem for me as I also suffer with Trigeminal Neuralgia and the chewing can trigger that. I do however carry a pocketful of cough drops (sugar free) at the ready to pop one… Go to post Trigeminal & occepital neuralgia before MS diagnosis in the Neurological and Brain forum Tags: MS occipital neuralgia Trigeminal Neuralgia Number of helpful marks: 1 Last updated Nov 20, 2017 No individual posts match your search, but the topic title or tags do. Trigeminal Neuralgia or Post Herpetic Neuralgia? in the PatientsLikeMe forum Tags: Neuralgia Trigeminal Neuralgia Number of helpful marks: 4 Last updated Nov 23, 2017 9674 thumb Carjeloz on Jul 19, 2011 At first my neuro was saying it was the Post Herpetic Neualgia because the pain happens to start where I had shingles 7 yrs ago and goes down the side of my face, now she is calling it Trigeminal Neuralgia. My question is how do I know which one it really is… Go to post Portrait default thumb Skardykat on Apr 02, 2015 I too have trigeminal neuralgia along with occipital neuralgia. At first I thought it was from two bouts of shingles. The doctor explained in that case the pain would not be bilateral . I totally understand the 24/7 pain. Many of us with neuropathy… Go to post 17450 thumb mcsr1957 on Jul 20, 2011 She has to take the neurontin almost daily if not the pain gets unbearable and she cannot function! they diagnosed the trigeminal neuralgia also. wishing you good health!… Go to post Sciatica in the Endocrine, Metabolism and Nutrition forum Tags: Sciatica pain Number of helpful marks: 0 Last updated Nov 08, 2017 99769 thumb SarahLembke on Oct 25, 2017 Hello @Rich2025,If you haven't seen it already, here is a link to the condition report for sciatic neuralgia: www.patientslikeme.com/.../overview. Along the left side of the condition report are links to more information about the community, to include common… Go to post What do you think caused your Fibromyalgia? in the Fibromyalgia and ME/CFS forum Tags: Life with Fibromyalgia Bartonella / Bartonellosis Broken Bones Cause of disease typhoid fever bacterial meningitis Genetics Degenerative Disc Disease Antibiotics Childhood/Childbirth scoliosis breast cancer Marshall Protocol Lyme disease Accident infection Insomnia Surgery PTSD Number of helpful marks: 403 Last updated Nov 05, 2017 Portrait default thumb pegleg49 on Dec 12, 2008 what to say. I just agree with granny from the Beverly Hillbillies---she needed the tonic to help her with her Rhuematis' neuralgia, neuritis, etc. LOL Is it autoimmune, accident, viral or something else? From what I have just read y'all have a lot in common… Go to post We're all together now: So tell me about your condition? in the PatientsLikeMe forum Tags: Conditions awareness raising activities Marijuana Multiple conditions PLM Community Interaction Number of helpful marks: 336 Last updated Oct 23, 2017 3226 thumb NanaBanana54 on Mar 05, 2011 and/or prickling/tingling, balance issues, paralysis, bladder and/or bowel problems, pain (excruciating in some cases like Trigeminal Neuralgia), vertigo, spasms, fatigue, speech, cognitive problems, heat and/or cold intolerance, etc. A BIG laundry list. We have… Go to post chronic tmj/tmd pain in the Neurological and Brain forum Tags: TMJ Neck pain Feedback needed Trigeminal Neuralgia Number of helpful marks: 5 Last updated Nov 13, 2017 105937 thumb Gigglez on Oct 02, 2017 I have severe migraines & also Trigeminal Neuralgia from my TMJ on both sides now, so idk how much of this may apply to you. I have found that decrease in caffeine helps reduce clenching. I spit out my mouth guard, so it's almost counter-productive. I… Go to post Ocrevus: You asked, we answered in the Multiple Sclerosis forum Tags: ocrevus Answers Helpful Information questions Number of helpful marks: 43 Last updated Nov 04, 2017 55064 thumb MariaLowe on Aug 15, 2017 patients ages 60 and older should receive the shingles vaccine (also known as Zostavax) to prevent shingles and post-herpetic neuralgia. This recommendation includes patients that don’t remember ever having an infection with chickenpox. Zostavax is a live vaccine… Go to post Pressure at head temples in the Parkinson's Disease forum Number of helpful marks: 12 Last updated Oct 07, 2017 100459 thumb wescat on Oct 06, 2017 symptoms (Important note, the chem I am blaming was introduced one week before these symptoms started)-- 1st symptom, trigeminal neuralgia (also called TMJ or 5th cranial nerve paresthesia) presented as pain and paresthesia right side of face, next ataxia… Go to post Portrait default thumb kmflynn on Oct 07, 2017 Kudos to wescat. You have really done your homework. A few more notes on Trigeminal Nueralgia, though. Not exactly the same as TMJ. Something incredible to deal with, and I hope no one ever has to go through it. The pain has been compared to worse than… Go to post Portrait default thumb kmflynn on Oct 05, 2017 Here's another one! Does anyone suffer from Trigeminal Nueralgia? Excruciating nerve pain on one side of the face which can come and go. Sometimes lays dormant for years. I have always wondered if there was a connection with PD, as all seemed to begin around… Go to post Is this Neuralgia? in the Neurological and Brain forum Tags: Neuralgia Feedback needed Number of helpful marks: 4 Last updated Oct 02, 2017 105937 thumb Gigglez on Oct 02, 2017 Maybe see a Practicing Osteopath for proper adjustments. Tramadol (NSAID) Injections are really helpful for my Trigeminal Neuralgia, as well as, Diazepam when it starts coming on. Benadryl to take down any sinus inflammation due to allergies. Honestly, opioids… Go to post 92974 thumb Nathe on Sep 05, 2017 I'm sorry that you are going through this, neuralgia is horrible especially cranial ones.You haven't specified what kind of tests the doctors preformed and which kind of neuralgia you have, a neurologist can test and prove it and it's very important that it… Go to post Portrait default thumb Mimi77 on Sep 05, 2017 completely still no pain but all the pressure. Went to emergency room and subsequently the doctors and they all say it's head neuralgia. They've put me on amitriptilyne but only just started. I feel it's not the right symptoms for tn or on as my ear is full… Go to post 8 Important Roles of Glutamate and Why It Is Bad to Have Too Much in the Neurological and Brain forum Tags: interesting article Snake Oil Sales glutamate pond scum Number of helpful marks: 0 Last updated Sep 26, 2017 Deactivated McWmn on Sep 26, 2017 correlate with symptoms severity in migraine patients (R). Glutamate may be involved in transmitting pain signals to the brain and trigeminal nerves of migraine patients (R). Several drugs that block glutamate receptors are showing some positive results in clinical… Go to post On behalf of the Team Of Advisors. in the PatientsLikeMe forum Tags: sharing data PLM Back pain My life with MS for 33 years 24 Days of Giving multiple sclerosis Stem Cell Therapy Team of Advisors Number of helpful marks: 1,583 Last updated Oct 09, 2017 52195 thumb Gramz on Dec 09, 2015 a number of health issues and had major surgery in August to have 2 parathyroids removed. I have Type 11 Diabetes, chronic neuralgia, high blood pressure, arthritis, sleep apnea, depression but he biggest issue I am dealing with right now is severe over all… Go to post Howdy! Introduce yourself here! in the Digestive and Intestinal forum Tags: Psoriatic Arthritis ulcerative colitis Crohn's Disease Psoriasis Introduction Chronic fatigue syndrome (CFS) Gastroparesis New Member Irritable Bowel Syndrome (IBS) Number of helpful marks: 37 Last updated Sep 20, 2017 Portrait default thumb hkjudy on Feb 05, 2012 Hi All, My primary challenge is Trigeminal Neuralgia (a nerve condition in the face that I call my "little devil") that I've had for 14 years now. But my most annoying problem for almost the last year has been pretty well constant diarrhea since I was given… Go to post Decongestant in the Parkinson's Disease forum Number of helpful marks: 2 Last updated Mar 17, 2017 5757 thumb daddytom on Mar 16, 2017 with other ingredients. Common brands that often contain dextromethorphan are Delsym, Vicks, Robitussin DM, Theraflu, and Triaminic, as well as other generic store brands. People taking the MAO-B inhibitors selegiline (Eldepryl) or rasagiline (Azilect)… Go to post Migraines in the Neurological and Brain forum Tags: nerves Headaches multiple sclerosis Auras Diclofenac lymph nodes Resources eye pain Migraines New Member Pain Number of helpful marks: 159 Last updated May 23, 2017 2975 thumb zoethefatcat on Feb 28, 2011 I've always had migraines. When I was a kid, they were diagnosed as trigeminal neuralgia. Now my neurologist has diagnosed my migraines as secondary to lupus (i.e., flares). The migraines start behind my eye (usually right) and migrate outward. I'm photophobic… Go to post 33070 thumb MLU103169 on Jun 13, 2011 I have only been getting Migraines for the last couple if years. I am 41 years old. I have also had Trigeminal Neuralgia for 16 years...closer to 20 is probably more like it. I tried Imitrex and Topamax, to no avail. I am now on a combination of Maxalt… Go to post Deactivated golightly on May 12, 2011 realized until today that the Tramadol I take could be a culprit. Always thought it was just related to inflammation along the trigeminal nerve. Fascinating stuff... I dumped my Nortriptyline (my only 'long-acting' pain med, and a terrible drain on my short-term… Go to post Vitamin D3 Megadose: Experience Journal in the Multiple Sclerosis forum Tags: Journal Vitamin D heat sensitivity Rash Lipid profile Body Temperature Nystagmus Vitamin D3 Vitamins in Megadoses Symptoms Vitamin K2 Weight Loss Cerner Health Number of helpful marks: 8,521 Last updated Feb 28, 2017 6453 thumb LadyMac on Jun 19, 2009 only been hospitalized twice (thank God), once for a headache that led me to my M.S. diagnosis. Second time was for my trigeminal neuralgia, I was the only one who knew what the problem was. Took three days of ER visits to finally be admitted, stayed there… Go to post 6453 thumb LadyMac on May 30, 2009 logical then they might want to do some testing and a lot of reading that night at home . Our family doctor learned about Trigeminal Neuralgia from ME! He remembered something from school all those years ago but wasn't 100% on what he was remembering and was… Go to post 11203 thumb queenie bee on Aug 02, 2009 I was getting excited about the dizziness easing, I started to get some pain on the left side of my face, exactly like Trigeminal Neuralgia. This is really the first time I've ever experienced pain with MS (not counting headaches), and it's making me mad. I… Go to post What patients like you said about migraines in the PatientsLikeMe forum Tags: Research migraine hemiplegic migraine complex confusional migraine Number of helpful marks: 22 Last updated Oct 30, 2017 Portrait default thumb Decor8er on Jun 22, 2016 I've had Trigeminal Neuralgia for almost nine years and although it was originally misdiagnosed as migraines (and I have had a daily headache that entire time) I didn't develop migraines until after my most recent TBI. A completely different headache, light… Go to post CLINICAL TRIAL--NP-001 in the ALS/MND forum Tags: immunomodulation Clinical Trials Sodium Clorite NP001 Autoimmune Disease Dexpramipexole Sodium Chlorite Chlorite WF10 Neuraltus Number of helpful marks: 2,191 Last updated Feb 15, 2017 2190 thumb Bunky on Jul 15, 2011 California, is a top echelon ALS clinician researcher. The scientific foundation of NP001 is extremely sound. Andrew Gengos, CEO of Neuraltis says, "NP001 regulates macrophages which play an important role in neuroinflammation. Our hope is that if we can reduce or… Go to post 36943 thumb amiga21 on Oct 12, 2011 the trial will roll over into an immediate Phase 3 with all who received the placebo, having the most effective dose. I hope Neuraltis is working on my Phase 3 plans! Unrealistic as it sounds, that's my hope. If all of this fails, it seems that there could… Go to post Radio frequency ablation (RFA) for occipital neuralgia in the Neurological and Brain forum Tags: occipital neuralgia Radiofrequency ablation Number of helpful marks: 1 Last updated Feb 09, 2017 88141 thumb firefly84 on Feb 09, 2017 Hi everyone, I'm curious if anyone has had RFA performed for occipital neuralgia after successful occipital blocks? If you have what was your experience like during the procedure as well as immediately after, prior to leaving the surgical center? Last questions… Go to post Horrible nuerologist experience today.. in the Multiple Sclerosis forum Number of helpful marks: 60 Last updated Feb 21, 2017 3226 thumb NanaBanana54 on Nov 16, 2009 didn't get diagnosed back then because the LP was inconclusive. 7+ years later (last year, Feb) I had a major attack of Trigeminal Neuralgia... neither my PCP nor his partner knew what was happening, the hospital was full of flu victims, the ortho I went to assured… Go to post Advice appreciated! in the Multiple Sclerosis forum Tags: MS New Member Advice Number of helpful marks: 13 Last updated Feb 05, 2017 94026 thumb Mizzkriss on Feb 04, 2017 life is routine. My symptoms started nearly 2 years ago with tremors, migraines and trimengial neuralgia. I dealt with these symptoms for a few months the neuralgia let up and the tremors and migraines hit a plateau. Months went by and the migraines and tremors… Go to post 60197 thumb Carol78 on Feb 05, 2017 Hi Miss,TN is the Trimengial neuralgia you mentioned...lol...sorry you did not get the shorthand.I would definitely ask for the referral to the large teaching hospital.Good luck!Carol… Go to post Electric shock sensations in tooth: Trigeminal Neuralgia? in the Multiple Sclerosis forum Tags: Trigeminal Neuralgia Number of helpful marks: 8 Last updated Feb 02, 2017 59476 thumb TJTAMPABAY on Dec 31, 2014 What are some dental considerations for patients with trigeminal neuralgia (TN)? Pain in the teeth and peridental structures is most commonly caused by dental disease. Trigeminal neuralgia is an uncommon condition that may also cause pain in the teeth… Go to post 2239 thumb bumby on Dec 31, 2014 Trigeminal Neuralgia has two different causes, one is MS, mine is caused by bilateral demyelination of my brain stem close to the Trigeminal Nerve pathways shown by 3.0 T MRI using a special protocol involving thin-section high resolution imaging. Another cause… Go to post 49450 thumb tallyflute on Dec 30, 2014 electric shock sensation in a molar. Dental x-ray revealed no abscess nor other dental-related cause. I have dealt with Trigeminal Neuralgia but have never experienced it in this way. Has anyone had anything like this? … Go to post 50 Signs of Fibromyalgia in the Fibromyalgia and ME/CFS forum Tags: Books Swallowing Signs Research Fibromyalgia,Fibro-fog, Pain Cause of disease Type 2 Diabetes reading physical symptoms Learning Fibromyalgia Resources Symptoms Number of helpful marks: 554 Last updated Jul 27, 2017 68396 thumb Peebs on Dec 31, 2014 thing is not much has changed with the view of the medical profession from my experience. I had 7 crashes with ME, Fibro, Trigeminal Nerve and cental nervous system etc and the 7 times institutalised in a mental health hospital and what what I gather from… Go to post 48184 thumb Linda49111 on Jun 21, 2013 rare type of pain -- other than FMS, it's only associated with a handful of conditions, including neuropathy, postherpetic neuralgia (shingles) and migraine. Allodynia is believed to be a hypersensitive reaction that may result from the central sensitization associated… Go to post Questions about Occipital Neuralgia in the Neurological and Brain forum Tags: Dr appointment occipital neuralgia Member needs support Number of helpful marks: 1 Last updated Feb 02, 2017 86852 thumb Vesterheim on Jan 30, 2017 the 4th ventricle near the cerebellum, could be pressing against the occipital nerve and causing pain. I googled occipital neuralgia and all I found that was useful was on the john hopkins medical page. nothing but research papers on the mayo clinic site… Go to post Monterrey Stem Cell Procedure in the ALS/MND forum Tags: Unproven treatment Stem Cell Research Stem cell transplantation Positive thinking / hope / optimism human growth hormone Stem Cells Tec de Monterrey Hans False claims Byer Beware LDN (Low Dose Naltrexone) Spam Number of helpful marks: 4,048 Last updated Jan 29, 2017 11181 thumb clippedwings on Dec 05, 2009 are predisposed to form neurons and glial support cells with no need for outside intervention. Glial cells, commonly called neuroglia or simply glia (Greek for "glue"), are non-neuronal cells that provide support and nutrition, maintain homeostasis, form myelin… Go to post Facial pàin in the Multiple Sclerosis forum Tags: possible trigeminal neuralgia Trigeminal Neuralgia Number of helpful marks: 2 Last updated Jan 14, 2017 51923 thumb OldSalt on Jan 13, 2017 Trigeminal neuralgia is a chronic pain condition that affects the trigeminal nerve, which carries sensation from your face to your brain. If you have trigeminal neuralgia, even mild stimulation of your face — such as from brushing your teeth or putting on makeup… Go to post Portrait default thumb lady_express_44 on Jan 14, 2017 that might appear to be MS symptoms."Related Disorders Symptoms of the following disorders can be similar to those of trigeminal neuralgia. Comparisons may be useful for a differential diagnosis. A variety of conditions can cause symptoms similar to those seen… Go to post Trigeminal Neuralgia due to MS in the Multiple Sclerosis forum Number of helpful marks: 4 Last updated Jan 08, 2017 Portrait default thumb Dogbeerlady on Jan 06, 2017 Is there anyone here who has been diagnosed with MS, but their only symptom is Trigeminal Neuralgia? Also, is anyone not taking medications for MS. I am not. … Go to post Portrait default thumb lady_express_44 on Jan 07, 2017 corticosteroids. Relatively speaking, I am still doing well 26 yrs (at least) into this disease ... touch wood! I have had Trigeminal Neuralgia, and would be happy if I could report that's all I've ever experienced. Are you questioning your dx because you've only… Go to post CADASIL: A genetic neurological condition often misdiagnosed as MS in the Neurological and Brain forum Tags: Fatigue brain atrophy MS Seizures Stroke multiple sclerosis Black out brain White Matter Disease CADASIL Migraines Genetic testing (DNA, genotype, gene testing) Rare disease Neurodegeneration Pain Dementia Number of helpful marks: 14 Last updated Dec 12, 2016 61357 thumb funktafied on Jul 06, 2016 a KU neurologist/opthamologist in the hospital teaching his students. He took me on as a patient. I was diagnosed with Trigeminal Neuralgia and Sunct syndrome. Both incurable brain diseases. They didn't have Sunct on here till I asked to have it added. You… Go to post 37549 thumb JandyM on Jul 06, 2016 they emailed me that you left a post. I am sorry for your diagnoses also, and for the health issues with your parents. Trigeminal Neuralgia is seen with some CADASIL patients. I will have to look up Sunct syndrome; that's a new one for me. I am confirmed for… Go to post Anyone of you are drooling at night ? in the PatientsLikeMe forum Tags: Drooling member needs ideas Number of helpful marks: 15 Last updated Nov 11, 2016 80515 thumb patyrod on Nov 11, 2016 I drool at night and during the day, too. Since I have bilateral trigeminal neuropathy, I have lost sensation in my mouth and face, so my mouth can't control the drooling because it can't feel much. Anytime I am out in public, I usually keep a tissue in my… Go to post Migraines: Botox Injections, Neurologist, Medication in the Neurological and Brain forum Tags: neurology Botox Zyprexa chronic migraine Trigeminal Neuralgia Number of helpful marks: 4 Last updated Nov 08, 2016 105937 thumb Gigglez on Nov 01, 2016 Day 39 of Migraines & Trigeminal Neuralgia. Passed out during a movie due to level 8.5 pain at about 9:15pm (after waking up at 3AM in pain yesterday). Although both conditions became increasingly worse, nonstop, & daily right after the occipital… Go to post Fibro, Migraine Meds & SSDI in the Fibromyalgia and ME/CFS forum Tags: Fibromyalgia migraine medication Number of helpful marks: 23 Last updated Oct 27, 2016 105937 thumb Gigglez on Aug 30, 2016 she really was sincerely concerned & should have been. No Dr. should tell a patient with Chronic Migraines & Trigeminal Neuralgia to just keep taking the Vicoden & Vicoprofen at 25-32.5mg/day. I see how incredibly irresponsible that was &… Go to post 105937 thumb Gigglez on Sep 01, 2016 picture of everything. Yes, I reiterated my issues being treated now starting with Chronic Migraines, TMJ Arthralgia, Trigeminal Neuralgia, CFS, Chronic Viral Infection, Complex-PTSD, Generalized Anxiety, Fibromyalgia, etc... I hope that will help. Well… Go to post 105937 thumb Gigglez on Aug 25, 2016 worked. We NOW realize it didn't work for the majority of my migraines because what I really had was TMJ Arthralgia & Trigeminal Neuralgia for years; undiagnosed. I suppose this is me reaching out & asking for any input on what medications work for… Go to post electric current feeling in legs in the PatientsLikeMe forum Tags: electric current feeling in legs New Member Member needs support Number of helpful marks: 6 Last updated Oct 21, 2016 89383 thumb NeeNee76 on Oct 11, 2016 I have this except mine is in my face. It's Trigeminal Neuralgia.… Go to post Anesthesia delorosa in the Neurological and Brain forum Tags: Member needs support Number of helpful marks: 1 Last updated Oct 19, 2016 Portrait default thumb Normasdaughter1962 on Oct 18, 2016 I'm needing ideas to help my mother who has had trigeminal neuralgia for years, now anesthesia dolorosa due to gamma knife.Any help or ideas would be much appreciated! … Go to post Overcoming Multiple Sclerosis: Member Casper opens up about his MS journey in the Multiple Sclerosis forum Tags: Motivation Food/diet/nutrition OMS control Life with MS Healthy Living Number of helpful marks: 86 Last updated Feb 21, 2017 Portrait default thumb Vanner on Sep 29, 2016 neuritis and set up an appointment to have an MRI. That showed several lesions, recommended an MS specialist. I also have Trigeminal Neuraliga. I take meds for that and Gilenia to slow the MS progression.… Go to post My feet are driving me crazy...they hurt a little but ITCH nonstop -advice? in the Diabetes Type 2 forum Tags: Coconut oil Neuralgia Itching Neuropathy atarax feet changes itchy spots Number of helpful marks: 23 Last updated Sep 24, 2016 85797 thumb InventingJoy on Aug 25, 2016 Sometimes, hoarding is a good thing LOL. I will try to make a batch. It also works for shingles. 7 days cured with no subsequent neuralgia. At least on a test of one LOL.I suspect but haven't tested it for psoriasis. Would have liked to but I haven't attempted… Go to post Chelena's Journal : This.... in the Mental Health and Behavior forum Tags: Depression Journal getting better Coping social skills obstacles Fibromyalgia PTSD TRIGGERS! Grief Alternative Therapies Migraines Therapy Number of helpful marks: 1,254 Last updated Sep 11, 2016 7238 thumb Chelena on Jul 20, 2013 really related to this article (below) a friend sent because I can't spend as much time gardening as I would like because of my neuralgia and having to use a cane so manouvering is difficult. It's very, very difficult to get into a comfortable position for weeding… Go to post 7238 thumb Chelena on Jul 20, 2013 herbs are helpful with fibro pain. Well, my fibro episode is finally ended but I still have terrible pain in my left leg from neuralgia. So for the past three days I've been using this cream that I used to use when my back hurt and I rubbed it all over the areas… Go to post 7238 thumb Chelena on May 30, 2013 by strangers I get into conversations with if I am a therapist.On the other hand, I often wonder if the Fibro and even the neuralgia has been caused by an imbalance not just in my physical body but in my own mind that is creating these problems. In any case… Go to post Do I want off of medications? in the Fibromyalgia and ME/CFS forum Tags: side affects Need help dont know what to do? medication Sleep Number of helpful marks: 10 Last updated Sep 12, 2016 105937 thumb Gigglez on Sep 03, 2016 circumstances. Actually, 1/2 of a 2.5 mg hydrocodone , 1 diazepam & 1-2 ibuprofen work best for my TMJ Arthralgia & Trigeminal Neuralgia that causes Migraines. Idk if my mind was just so set on getting off of them that my body just doesn't react well anymore… Go to post 105937 thumb Gigglez on Sep 07, 2016 Vicoprofen I was taking in 25-32.5mg of codeine per day. Now, it's 0. I have a couple 2.5 hydrocodones left for my Trigeminal Neuralgia to avoid an ER trip, otherwise it's 2 aspirin, 2 Valium & Lidocaine Patches. The NSAID side effects are awful on… Go to post EYE JUMPING in the Fibromyalgia and ME/CFS forum Tags: Fibromyalgia,Fibro-fog, Tics Number of helpful marks: 1 Last updated Sep 08, 2016 105937 thumb Gigglez on Sep 08, 2016 need for a new prescription. Personally, I find it worse with calcium deposits, stress, allergies, jaw clenching & Trigeminal neuralgia issues. I get watery eyes a lot, too. However, my eyes also do jump. I'm literally looking in one place, then my… Go to post Drugs or No Drugs? A newbie's dilemma... in the Multiple Sclerosis forum Tags: Vitamin D ocrelizumab Meditation sunlight MS Food/diet/nutrition Exercise vegan Number of helpful marks: 363 Last updated Nov 14, 2016 2239 thumb bumby on Nov 13, 2015 never had tm if that’s what you mean I have trigeminal neuralgia (tn). Yes I have had relapses since then. I have gone thru two interferions and a second go around of copaxone which is when my trigeminal neuralgia really kicked in. on tysabri it stopped the… Go to post 88573 thumb Wizardora on Sep 25, 2015 steroids... My neurologist says they lessen the scarring! I have drugs to give me energy, stop cramps & to treat trigeminal neuralgia - the most painful symptom I've had! I am now SPMS but it's 30 years since my first symptom! I'm still mobile, drive… Go to post 33426 thumb amshink on Sep 26, 2015 this time. I have had MS for 33 years but wasn't diagnosed until 1993. Back when I had my first symptoms it was diagnosed as a neuralgia cause unknown(before MRI 1982). I was symptom free for many years but looking back it explains a lot of 'weird' things I had… Go to post LIMBO LOBBY and Waiting Room (ALL are WELCOME)!! in the Multiple Sclerosis forum Tags: LimboLand member support Number of helpful marks: 334 Last updated Sep 06, 2016 11499 thumb wackygal on Apr 22, 2010 be anxious and depressed. We know something is wrong but can't prove it. I have had numbness, tingling, off balance, trigeminal neuralgia, nystagmus, double vision (but no optic neuritis) and one pupil gets bigger than the other one sometimes. I felt pretty… Go to post atypical facia lpain in the PatientsLikeMe forum Tags: A typical facial pain facial pain Member needs support Number of helpful marks: 2 Last updated Aug 31, 2016 88021 thumb redbomber60 on Aug 29, 2016 be on but I'm 63. There are still days I get break through pain even on pain medication. I had an mri done to outrule trigeminal neuralgia. I can only hope that it will burn itself out again because it has been going on now for 17 months. It literally stopped… Go to post Atypical facial pain not trigeminal neuralgia in the PatientsLikeMe forum Tags: A typical facial pain Number of helpful marks: 0 Last updated Aug 31, 2016 88021 thumb redbomber60 on Aug 31, 2016 Atypical facial pain not trigeminal neuralgia i've heard from one lady being diagnosed with this has anyone else been diagnosed with this horrible facial pain they say it's a nerve but they don't know what nerve it is I suffer from horrible pain in my nose… Go to post Narcotic Crackdown in the Fibromyalgia and ME/CFS forum Tags: Drugs chronic daily headache Pain management Number of helpful marks: 10 Last updated Apr 06, 2017 105937 thumb Gigglez on Jul 22, 2016 less is more on the hydrocodone . At 2-2.5mg most days this month, except with breakthrough pain due to a Flare Up & Trigeminal Neuralgia. Melaxicam is helping slightly since I cannot take any other NSAIDS. I am 2 days in to Citalopram / Celexa to help with… Go to post Trigeminal Neuralgia in the PatientsLikeMe forum Tags: Trigeminal Neuralgia Number of helpful marks: 2 Last updated Jan 28, 2015 62333 thumb KaraSmith on Jan 28, 2015 Hi @RMcAdie, Sorry to hear about your recent Trigeminal neuralgia and the pain you've been in. You can find fellow patients with Trigeminal Neuralgia through the condition page. There's also information on what people have taken for TN here, which could be… Go to post 69023 thumb RMcAdie on Jan 27, 2015 I recently went through about of trigeminal neuralgia and when the doctor asked me on a scale 1 to 10 what my pain was without any hesitation I said 20! has anyone experienced this what was your experience what did you do to deal with it what sorts of drugs… Go to post trigeminal neuralgia in the Immune, Inflammatory and Infections forum Tags: Trigeminal Neuralgia Number of helpful marks: 3 Last updated Nov 04, 2012 184 thumb MollyCotter on Oct 29, 2012 wonderful list of resources you've provided. I'm also adding a link to the list of patients here on PatientsLikeMe with Trigeminal Neuralgia and a link to the condition page for TN. This will help you find more patients with TN who might have useful information… Go to post 41570 thumb jujubeee714 on Oct 28, 2012 mine but my glucose has been in check (under 6) for the last fifteen years or so. I also have cranial arteritis, geniculate neuralgia, bells palsy three times now, etc. TN is a real nightmare. I know about a dozen of us with sle or ra and TN. I'm happy to… Go to post Trigeminal neuralgia in the Lupus forum Tags: Gabapentin Lyrica Trigeminal Neuralgia Number of helpful marks: 0 Last updated Sep 02, 2015 No individual posts match your search, but the topic title or tags do. trigeminal neuralgia in the Multiple Sclerosis forum Tags: Trigeminal Neuralgia Number of helpful marks: 2 Last updated May 17, 2012 Portrait default thumb jeanjean on May 10, 2012 trigeminal neuralgia… Go to post 118867 thumb gimpy2 on May 10, 2012 TN was one of my first problems . mine is on the right side of my face . http://www.tmjdisorders.com/trigeminal-neuritis.aspx http://www.tna.org.uk/pages/facepain.html mine was mild until just recently a car accident made it bad. just told if have tmj on… Go to post Trigeminal Neuralgia in the Multiple Sclerosis forum Tags: Acupuncture Treatments toothache Trigeminal Neuralgia diagram TN illustrations Pain Number of helpful marks: 49 Last updated Jan 24, 2014 41282 thumb lizupatree on Jul 09, 2008 Many people with MS will experience Trigeminal Neuralgia (TN) sometime in their life. Here is some information on Trigeminal Neuralgia provided by the MayoClinic.com:Trigeminal Neuralgia (TN)DefinitionImagine having a jab of lightning-like pain shoot through… Go to post 22589 thumb curlytop on May 07, 2010 Some thirteen years after being diagnosed with MS, I encountered the painful symptoms attributable to trigeminal neuralgia. Various pain killers were used. Carbamanzapine caused a rash. Gabapentine sort of worked. Lyrica worked so well that I couldn't even… Go to post 6453 thumb LadyMac on Feb 01, 2009 TNT Saturday Feb. 7th that I think everyone on PLM might find interesting. It's of MY neurologist who's worked on my trigeminal neuralgia. Hope some might find it interesting, he's a cool, very down to earth doctor, I just love him and I can't wait to see… Go to post Trigeminal Neuralgia in the Multiple Sclerosis forum Tags: Trigeminal Neuralgia Number of helpful marks: 49 Last updated Mar 07, 2011 5671 thumb dancingrainbow on Oct 01, 2008 All you guys who have Trigeminal Neuralgia, please please, add it to your symptom list! There are some researches trying to prove that this is clearly a side effect of MS! They need our help!!!… Go to post 41282 thumb lizupatree on Sep 30, 2008 Here is a thread on Trigeminal Neuralgia with diagrams, etc.… Go to post Deactivated memia on Sep 30, 2008 I'm sorry to have you all confused..yes i mean trigeminal- neuralgia.… Go to post Trigeminal Neuralgia? in the Neurological and Brain forum Tags: Tegretol Trigeminal Neuralgia Number of helpful marks: 3 Last updated Sep 10, 2011 31163 thumb Gemster on Sep 08, 2011 turned out to be a very slowly abscessing tooth! No tooth pain; thought like you it was sinus or SOMETHING else, but no trigeminal neuralgia. That sort of pain is really classic shooting pins and needles, electrical like. If you're feeing a lot of pain from… Go to post 27508 thumb daisy332 on Sep 06, 2011 My neurologist recently diagnosed me with trigeminal neuralgia and put me on Tegretol. I have found pages about this and read quite a bit but I figured maybe getting info from someone that actually has it might be better. I seem to get more pain in my face… Go to post here to ask and give information in the Multiple Sclerosis forum Number of helpful marks: 28 Last updated Dec 04, 2017 62556 thumb JanG1360 on Nov 23, 2017 Home » Conditions & Treatments » Trigeminal Neuralgia Trigeminal Neuralgia Share Email Print Trigeminal neuralgia (tic douloureux) is a disorder of a nerve at the side of the head, called the trigeminal nerve. This condition causes intense, stabbing… Go to post Portrait default thumb lady_express_44 on Nov 23, 2017 relationship between Transverse Myelitis and Multiple Sclerosis. Your posting and article is about Transverse Myelitis, not Trigeminal Neuralgia, Janice. Welcome to the forum, Jan. I get TN (have also had TM) in various places in my face. I have surprisingly found… Go to post 119632 thumb soulation on Nov 23, 2017 Hey Jan Trigeminal Neuralgia I have experienced this once sort of like a baseball bat across the face? this was just once though, and years ago I didn't know what it was and had no Health Team near me at the time I do have a friend who suffers with this she… Go to post Trigeminal Neuralgia in the Multiple Sclerosis forum Tags: Trigeminal Neuralgia Number of helpful marks: 10 Last updated Oct 20, 2010 6147 thumb 0LIMITS on May 13, 2010 Years ago (when they discovered I had BOTH the vascular loop AND lesions on the trigeminal nerve) I used burrito shaped "bean bags" filled with raw beans and rice that had been heated in the microwave (CHEAP way to get LOTS of these in the house FAST) while… Go to post Trigeminal Neuralgia or Post Herpetic Neuralgia? in the PatientsLikeMe forum Tags: Neuralgia Trigeminal Neuralgia Number of helpful marks: 4 Last updated Nov 23, 2017 9674 thumb Carjeloz on Jul 19, 2011 At first my neuro was saying it was the Post Herpetic Neualgia because the pain happens to start where I had shingles 7 yrs ago and goes down the side of my face, now she is calling it Trigeminal Neuralgia. My question is how do I know which one it really is… Go to post Portrait default thumb Skardykat on Apr 02, 2015 I too have trigeminal neuralgia along with occipital neuralgia. At first I thought it was from two bouts of shingles. The doctor explained in that case the pain would not be bilateral . I totally understand the 24/7 pain. Many of us with neuropathy… Go to post 17450 thumb mcsr1957 on Jul 20, 2011 She has to take the neurontin almost daily if not the pain gets unbearable and she cannot function! they diagnosed the trigeminal neuralgia also. wishing you good health!… Go to post trigeminal neuralgia in the Fibromyalgia and ME/CFS forum Number of helpful marks: 3 Last updated May 12, 2016 42160 thumb NetTyme on Aug 29, 2010 https://health.google.com/health/ref/Trigeminal+neuralgia Overview Trigeminal neuralgia is very painful swelling (inflammation) of the nerve (trigeminal nerve) that delivers feeling to the face and "surface" of the eye. Symptoms Very painful… Go to post 17157 thumb leighann on Aug 29, 2010 I HAVE FIBROMYALGIA AND RECENTLY DIAGNOSED WITH TRIGEMINAL NEURALGIA. SO OF COURSE I HAVE GAINED ANOTHER MEDICATION BECAUSE THE OTHER 7 IM ON DONT TREAT THAT. DOES ANYBODY HAVE ANY INFORMATION OUT THERE ON THIS ILLNESS. THERE ARE DAYS THAT MY EYEBALL FEELS… Go to post 26932 thumb meyerjen on Aug 30, 2010 started having TIA's with my miagraines. Which later after reading a great book Miagraine brain, I read to request an MRI of the Trigemianl nerve. I did and it was swollen. when I have a TIA my left side of my face goes limp. I had laser treatment done right away… Go to post Trigeminal Neuralgia due to MS in the Multiple Sclerosis forum Number of helpful marks: 4 Last updated Jan 08, 2017 Portrait default thumb Dogbeerlady on Jan 06, 2017 Is there anyone here who has been diagnosed with MS, but their only symptom is Trigeminal Neuralgia? Also, is anyone not taking medications for MS. I am not. … Go to post Portrait default thumb lady_express_44 on Jan 07, 2017 corticosteroids. Relatively speaking, I am still doing well 26 yrs (at least) into this disease ... touch wood! I have had Trigeminal Neuralgia, and would be happy if I could report that's all I've ever experienced. Are you questioning your dx because you've only… Go to post Trigeminal Neuralgia in the Multiple Sclerosis forum Number of helpful marks: 9 Last updated Nov 19, 2010 6147 thumb 0LIMITS on Dec 02, 2009 here's a link to their info, and all of the posts so far having to do with TN: http://www.patientslikeme.com/search?q=trigeminal+neuralgia The search bar near the top right corner of the page can help with topics like that as well. Meanwhile -- I've done… Go to post trigeminal neuralgia in the Multiple Sclerosis forum Tags: Trigeminal Neuralgia Number of helpful marks: 1 Last updated Feb 17, 2011 3226 thumb NanaBanana54 on Nov 27, 2010 to visit Oz! So much I see on TV lets me know it's a beautiful place and I just LOVE to hear people from there speak! Trigeminal Neuralgia (TN) sucks. That was my second major exacerbation and I was truly ready to have someone shoot me to put me out of my… Go to post 29969 thumb tgn on Nov 25, 2010 medications in the u.s are not available here yet i was diagnosed about 9years ago & every day have since had some form of trigeminal pain iam & always have taken tegretol (carbamazepine) to control pain which is a lot of the time excrutiating i am taking… Go to post TRIGEMINAL NEURALGIA in the Multiple Sclerosis forum Number of helpful marks: 16 Last updated Aug 24, 2011 41282 thumb lizupatree on Aug 31, 2008 Trigeminal Neuralgia (TN)DefinitionImagine having a jab of lightning-like pain shoot through your face when you brush your teeth or put on makeup. Sound excruciating? If you have trigeminal neuralgia, attacks of such pain may occur frequently. You may initially… Go to post 5671 thumb dancingrainbow on Sep 04, 2008 See my post from last month. type in trigeminal neuralgia at the pearch at top of page. it contains some good responses. My problem is under control now with the trileptal. Took injections INTO FACE for many years. Not fun.… Go to post Trigeminal Neuralgia in the Multiple Sclerosis forum Tags: Trigeminal Neuralgia Number of helpful marks: 4 Last updated Dec 16, 2010 3834 thumb JustSmile on Jun 27, 2009 so I apologize if I have messed up some how, but I kind of need some advice. I have found myself dealing with chronic trigeminal neuralgia from my MS - my face, lips and tongue burn all the time and sometimes it gets so bad I can't think straight. My neuro… Go to post 6147 thumb 0LIMITS on Jun 27, 2009 med, and have NO OTHER PAIN LEFT BUT TN.If you'd like to discuss it more with me, feel free to e-mail me -- there is also a Trigeminal Nerve disorder type website... I think their web address is something like "STOPTHEPAIN.ORG" or somesuch, but I don't remember… Go to post Trigeminal Neuralgia in the Multiple Sclerosis forum Tags: Trigeminal Neuralgia Number of helpful marks: 6 Last updated Oct 31, 2010 41282 thumb lizupatree on Nov 21, 2008 For those not familiar with Trigeminal Neuralgia (TN), there is info on diagnosis, treatment, illustrations, etc, in this thread on Trigeminal Neuralgia. Liz… Go to post Trigeminal Neuralgia in the Multiple Sclerosis forum Number of helpful marks: 3 Last updated Nov 27, 2009 Deactivated Leddy on Mar 25, 2009 Here'S the link or go to the top of the board and click on symptoms! http://www.patientslikeme.com/symptoms/show/174-trigeminal-neuralgia Hiope you find some relief soon! Hugs Leddy… Go to post TRIGEMINAL NEURALGIA in the Multiple Sclerosis forum Tags: Tegretol Trigeminal Neuralgia Lyrica Number of helpful marks: 0 Last updated Aug 28, 2011 No individual posts match your search, but the topic title or tags do. MS--TRIGEMINAL NEURALGIA. in the Multiple Sclerosis forum Number of helpful marks: 5 Last updated Sep 30, 2013 2239 thumb bumby on Sep 28, 2013 Trigeminal neuralgia can be caused by MS lesions or by something pressing on the trigeminal nerve such as a vein or artery a tumor etc. I have trigeminal neuralgia caused by lesions in my brainstem at the level of the middle cerebellar peduncles which is located… Go to post 12396 thumb HACKSAWPUF on Sep 28, 2013 TRIGEMINAL NEURALGIA: THIS DISEASE IS A VERY EXCRuTATIING PAIN IN THE FACIAL NERVES. Symptoms are sudden, sharp pain in the head or face. IT may feel like an electric shock., which it does!!!!! I have this. AND it is a severe pain. I went to my DR. and… Go to post Trigeminal neuralgia in the Multiple Sclerosis forum Number of helpful marks: 0 Last updated Aug 13, 2010 No individual posts match your search, but the topic title or tags do. Nutrition Research and Trigeminal Neuralgia in the Neurological and Brain forum Number of helpful marks: 1 Last updated Feb 10, 2014 61181 thumb fsherwood on Feb 09, 2014 I am a patient advocate with the Trigeminal Neuralgia Association. I would like to bring attention to a recently discovered diet for stopping TN pain. Patients in 10 countries became pain free by dramatically reducing the saturated fat in their diet. Dr. Narayan… Go to post Newly Diagnosed with Trigeminal Neuralgia in the Neurological and Brain forum Tags: Vanishing White Matter Disease New Member White Matter Disease Member needs support Trigeminal Neuralgia Number of helpful marks: 1 Last updated Feb 09, 2014 59869 thumb GioDG on Feb 03, 2014 I have recently been diagnosed with Trigeminal Neuralgia. A few weeks ago I got a strange "shock" sensation to the side of my head that lasted for only a moment. It didn't hurt really, just surprised me. Two days later I got that "shock" feeling again,… Go to post 74287 thumb Emma on Feb 09, 2014 @GioDG Hi Jordana, Sorry to hear you have been recently diagnosed with trigeminal neuralgia - sounds like you've had a rough year but glad that you found PatientsLikeMe so you can tap into a pool of knowledge and support from fellow patients who may understand… Go to post Trigeminal Neuralgia - Glycerol Injection Rhizotomy in the Neurological and Brain forum Tags: Trigeminal Neuralgia Number of helpful marks: 5 Last updated May 14, 2017 100459 thumb wescat on May 04, 2017 to TCE, mainly subclinical, is revealed by electrodiagnostic techniques. Pain or numbness in the distribution of the trigeminal nerve suggests a disorder of that nerve.… Go to post About Trigeminal Neuralgia in the Neurological and Brain forum Tags: Trigeminal Neuralgia Number of helpful marks: 6 Last updated Mar 29, 2012 118867 thumb gimpy2 on Dec 14, 2011 and mild headache. Since this problem isn't well known I'd thought I post it here. http://www.mayoclinic.com/health/trigeminal-neuralgia/DS00446 I was originally misdiagnosed with migraines in the beginning . I do get migraines and tension headaches not… Go to post 74287 thumb Emma on Dec 16, 2011 symptoms, treatments, etc but can also act as an aide memoire for you. Thank you both for continuing discussion about Trigeminal Neuralgia, looks like you are not alone according to the patients page, that shows 84 members currently list this condition. Emma … Go to post trigeminal neuralgia headaches in the Multiple Sclerosis forum Tags: TN Number of helpful marks: 25 Last updated Feb 18, 2011 18857 thumb anyalock on Apr 18, 2010 I know that there are several people out there who suffer from trigemnal neuralgia ... hell ANYONE who has it suffers but I digress. I am wondering whether or not my headaches are related to the TN or something else ... MS or LDN? I know that my facial issues… Go to post Portrait default thumb MSinColorado on Aug 12, 2010 second and NEVER lets up). additional I have sharp stabbing pain above my left eye and below it in those "branches" of the Trigeminal nerve. I have had several surgeries to try and stop the pain. The most agressive surgeries have been Gamma Knife and Peripheral… Go to post 60197 thumb Carol78 on Aug 10, 2010 Cherie - The chart you posted was excellent. I have had Trigenincal Nerve symptoms dating back to 1998 even though my diagnosis (and definitive symptom of double vision) wasn't until 2006...makes me wonder if I had "benign" ms all those years. Burns me that… Go to post Trigeminal Neuralgia in the Multiple Sclerosis forum Number of helpful marks: 0 Last updated Aug 06, 2008 No individual posts match your search, but the topic title or tags do. trigeminal neuralgia pain in the Multiple Sclerosis forum Number of helpful marks: 0 Last updated Feb 04, 2014 28315 thumb fortywinks on Feb 03, 2014 I am so sorry to hear that. I have heard that the pain from trigeminal neuralgia is really shocking. I do hope this can ease for you very soon. Heather.… Go to post Surgery? Trigeminal Neuralgia in the Multiple Sclerosis forum Number of helpful marks: 9 Last updated Oct 31, 2010 6147 thumb 0LIMITS on Jul 15, 2008 I had a Microvascular Decompression (MVD) for Trigeminal Neuralgia... three and a half years ago... and it was VERY helpful... for exactly that amount of time... but when I returned to my Neurosurgeon two weeks ago (to "return my MVD" because it was no longer… Go to post 10927 thumb Kylesmom on Jul 15, 2008 I have gotten all of the sites for Trigeminal Neuralgia and being diagnosed with it yesturday, I am thinking I want to be aggressive about it and skip the meds I got and go straight to the semi perminant "decompressed" surgery. I was wondering if anyone had… Go to post BURNING MOUTH SYNDROME and TRIGEMINAL NEURALGIA in the Multiple Sclerosis forum Tags: Trigeminal Neuralgia Burning Mouth Syndrome Number of helpful marks: 2 Last updated Oct 16, 2015 76311 thumb dakotalady on Oct 16, 2015 I have lots of problems but the most recent has been the Burning Mouth Syndrome and Trigeminal Neuralgia. Talk about a double whammy! Any suggestions on how to cope and help the pain? Can't hardly take this. Please. Mizmikey… Go to post